3q29 Foundation
Creating a path to treatment for chromosome 3q29 syndromes through funding research, community-building, and increasing access to information and resources.
What You’ll Find Here
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Research
Just the facts
We share results of 3q29 studies in a way you can actually understand. We also include links to the full reports if you like to go in-depth. And don’t worry, there’s no fake news here. Our information comes directly from qualified, well-trained researchers.
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Information
To share with your healthcare team
If 3q29 has been part of your life for a while, you know you’re often educating your team about the condition. Our experts created shareable and downloadable information you can actually hand to your care team.
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Resources
Helpful tips
We’ll help guide you through this journey, including on providing information on joining the 3q29 registry through Rutgers University.
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Connection
People who understand
Wondering what’s possible for you or your child? What challenges you might face? We’ll share real-life stories that illustrate the diverse experiences in this community. You’ll have he opportunity to connect with other families or individuals all over the world affected by 3q29 who get it.
Who We Are
We’re a growing community of researchers, parents, and people living with a 3q29 condition.
Until 2005, no one had even heard of 3q29 deletion or duplication. Very little information was available about what to expect upon diagnosis. In truth, we still don’t know as much as we’d like - but we’re working on it. And we’re determined to make it easier for you to get the knowledge, resources, and connection you need in one place.
