The 3q29 Foundation is a tax exempt 501(c)3 nonprofit organization and our Identification Number (EIN) is 93-2052188.

Our website and related activities are led by volunteers to support other people with 3q29 Deletion Syndrome or 3q29 Duplication Syndrome and their caregivers. The information we provide is for general informational and educational purposes and is not a substitute for professional medical advice. We are not formally affiliated with any medical or research body, and all our information is based on our own understanding of the research and our own experiences.

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